Dear Diabetes, by Caleb | #dblogweek

As I did last year, I am letting Caleb author the Diabetes Blog Week posts.

Since Caleb has no appreciation or lack of thereof, for that matter, for the differences among people living with diabetes, there isn’t much to say on yesterday’s topic. He just simply isn’t aware enough about what is different about being type 1 versus type 2 or being an adult versus a child versus a caregiver. He doesn’t really care. I see that as a good thing. At his age he’s just living life, not focusing on it and I think that’s appropriate for an eight year old.

He was, however, willing to write a letter to diabetes. Here is is:

Dear Diabetes,

Sometimes you get annoying like when I am high or low. Sometimes I wish I didn’t have diabetes. It really sucks, but I got used to you. I want a cure. Please go away. It would help.

P.S. I want to let you know you’re not going to bring me down, – I’ll always be standing up!

Your owner,

Caleb

“He’s Yours for a Reason” | #dsma Guest Post & #SibsofDKids

I’m honored to be a guest blogger at Diabetes Social Media Advocacy, a venture that Cherise created and moderates and of which I have the privilege of being an advisory board member.

As luck would have it, it coincides with the Sibs of D Kids event that Sherry and Lexi put together. One of the points of my post is how I try to balance my relationships with each of my children as equally as I can.

So I ask that you visit me over at DSMA to read about the inspiration behind my Twitter handle, Colcalli: Caleb and his D-Sibs, Colin and Lila.

Have a fun Sibs of D Kids day!!

No D Day | by Caleb

Caleb doing his thing

Hi, my name is Caleb, pernounced: Cay-lub.

I have a sister named Lila, a brother named Colin, a mom named Lorraine and a dad named David.  We are a family of five.  We have two frogs named Greasy Plate and Tushy.

I have brown hair and brown eyes. I am almost 8 and I like the Yankees.  Actually, I love the Yankees. I wear the number 13 when I play baseball because I like A-Rod.

I am tall and kindof smart.  I like school and I like music. Nick Jonas is my favorite rock star.

I like to eat sunflower seeds, beef jerky, pasta and meatballs. I am allergic to peanuts which stinks because I have to sit at the peanut table at school and I want to sit with my friends.

My favorite color is green.

I like to play mancala and chess.

I like reading and my favorite books are 39 Clues and Harry Potter. I’m in 2nd grade and I like it so far. It’s fun and I like my teacher.

The End.

Goodbye.

Click on the image for the complete No D Day blogroll

#DArtDay | Fun and Games!

So, I accumulated a bunch of supplies, mostly used, and threw them on the dining room table. With only a little brainstorming with Colin and Lila, Caleb came up with the idea of depicting our cabin from DCamp – Rainbow Ridge:

Rainbow Ridge and all its occupants at family DCamp 2010

He included test strips as stairs, batteries as smoke detectors (I guess there were smoke detectors in the cabin, but I don’t remember), a sun, boats off to the right and lancets representing our family, the two other families, the counselors who bunked in the loft and the nurse coming through the open Pod-door for BG checks and insulin.

Colin created a simple test strip homage to camp:

Camps Barton and Joslin Forever!

Lila made what she called a Pod Blob:

Pod Blod complete with adhesive clouds and a surprised, O-mouthed sun.

Then she was inspired to create a game of chance that works as follows (for 2 or more players):

– Select a Pod.

– If the Pod has a test strip stuck to the bottom, you get to keep it and take another turn.  If there’s no strip, play continues to the next player.

– The player with the most Pods at the end of the game, gets the batteries in the middle as a prize.

Pod Game of Chance

Here’s Caleb with a WaveSense winner:

WaveSense Strip - go again!

And Lila with a Freestyle one:

Another winner!

I joined in and made a simple flower:

Pod Flower

In the middle of it all, Caleb rocked the 100!

Diabetes Art Day 100

Colin, Caleb and Lila were amazingly excited about what they could do with these supplies.  It was a fun time. Thanks Lee Ann for the inspiration! Happy Diabetes Art Day to all!!

Dream a little dream. Caleb’s view of life with a cure.

Day 7 of Diabetes Blog Week.

Dream a little dream – life after a cure.

What do you think life would be like if a cure was discovered and you no longer had diabetes?
I would feel like I wouldn’t have to do anything like check my sugar.  I would feel like I was free from diabetes.  I would be happy.

I think I would be bored sometimes because of all the things I wouldn’t have to do.  Like I would feel like I was forgetting something if I didn’t do anything before I ate.

I think I might feel like I was vibrating where DexCom usually is because I would remember that.  My fingers and toes wouldn’t look like they had holes in them.

I would have a celebration with a bunch of meters around a table for decoration and then make a cake with a meter on it that says “100” and under that “Cure for D”.   We could also make a piñata in the shape of a pricker and make a big over-sized hand to beat it with.  Since the pricker is normally poking the hand, the hand will have a chance to win.

Day 1 – A day in the life of…diabetes.

Day 2 – Making the low go.

Day 3 – Your biggest supporter.

Day 4 – To carb or not to carb.

Day 5 – Let’s get moving.

Day 6 – Diabetes Snapshots.

Diabetes Snapshots. Of Caleb and more.

Day 6 of Diabetes Blog Week.

Diabetes Snapshots

One of those magical moments.
Caleb being Caleb.
4 months worth.
Test strip fun - a younger Caleb.
Filling an OmniPod syringe.
World Diabetes Day
WDD Big Blue Test - brotherly solidarity.
WDD - Lila with blue nails.
Lila emulating Caleb.
These are Caleb's numbers on his 7th birthday.
In the t-ball field with Dad. Always a watchful eye both on the call and on Caleb.
Heading to Yankees stadium. We had a great save on pretzel carbs by the Twitter team. Click to read.
WDD - Hands encircled in blue glow.
Total support - Caleb with father, brother, sister, mother.

Day 1 – A day in the life of…diabetes

Day 2 – Making the low go.

Day 3 – Your biggest supporter.

Day 4 – To carb or not to carb.

Day 5 – Let’s get moving.

Tomorrow’s topic: Dream a little dream.

Let’s get moving. What Caleb thinks.

Day 5 of Diabetes Blog Week.

Let’s get moving. Exercise . . . love it or hate it?

Running the bases.

Caleb:
I like to play baseball and to swim. Playing pickle with my dad and brother is fun. Sometimes I eat something before I go outside to play so I don’t go low because running around makes my blood sugar drop. Before I go to baseball, my mom gives me something extra to eat so I won’t go low during the game.

DexCom helps because if it buzzes low I know I’m on the way down and I just check my sugar. I might take a sugar tablet or drink a juice box if I’m low. Sometimes it’s a pain because I want to play instead of doing it. It really doesn’t get in my way though. I still do the things I want to do and I don’t need to stop doing them.

Activity did not pose a problem with Caleb’s blood sugar until about a year ago. Last summer Caleb swam almost every day. I have concluded that swimming is more potent and has a faster onset than any insulin out there on the market. It has been the hardest activity to manage, but we do it because the alternative – not swimming, playing baseball or generally living a full life – is simply not an option.

Chilling out in the pool.

Day 1 – A day in the life of…diabetes.

Day 2 – Making the low go.

Day 3 – Your biggest supporter.

Day 4 – To carb or not to carb.

Tomorrow’s topic: Diabetes snapshots.

To carb or not to carb. As Caleb sees it.

Day 4 of Diabetes Blog Week.

To carb or not to carb. Today let’s blog about what we eat. And perhaps what we don’t eat.

Chomping on a granny smith - 20 carbs.

In Caleb’s words (sorry, but this is a bit of a ramble):

I don’t eat peanut butter because I’m allergic to it. I don’t eat frogs, rocks, grass, slime or anything like that.

I like apples, cheese and crackers, pretzels, Nutrigrain bars for snacks and sandwiches, yogurt parfaits, peppers and fruit for lunch. I like cereal, muffins, toast, waffles and oatmeal for breakfast. I like pasta, chicken parm (but I don’t like eggplant parm) tacos, lentil soup and chili for dinner and cake, cookies or fruit for dessert. One time Dad made a wrap with sausage, egg and cheese and I liked that. I also like pizza, Chinese food and salad. I like cucumbers, carrots, Swiss cheese, pears, bananas, grapes, strawberries, mangoes, peaches. I like every kind of fruit there is. Ice pops, ice cream and jolly ranchers are good.

I think he would have gone on forever, but at this point, I just said, “Thank you, that’s enough.”

I worry, of course, about the impact that diabetes has on Caleb, both physically and emotionally. I worry about whether he feels restricted when it comes to food. There is nothing that I say “no” to because of diabetes, but there are things that I avoid because of the impact that they have on Caleb’s blood sugar. I am pleased that his response showed no indication of that. The fact that Caleb does not eat frogs or rocks or slime has absolutely nothing to do with their carb count, fat content or impact to his blood sugars – I promise.

Chowing down on Dad's hamburger 65 carbs with salad and milk.
Feasting on Mom's chicken pot pie - 70 carbs all in.

Day 1 – A day in the life of…diabetes.

Day 2 – Making the low go.

Day 3 – Your biggest supporter.

Tomorrow’s topic – Let’s get moving.

Your biggest supporter. In Caleb’s words.

There were lots of great suggestions to treat lows yesterday. I’m glad to have some new ideas. Thank you everyone!

Day 3 of Diabetes Blog Week.

Your biggest supporter. Today it’s time to gush and brag about your biggest supporter.

Caleb gets lots of support from many.  Nurse Ronnie, his school nurse, is a true contender for being his biggest supporter.  Any of his family members would be viable options.  He thinks differently.

Nick Jonas talks about his fight against juvenile diabetes at the National Press Club in Washington on August 24, 2009.

In terms of diabetes, who is your biggest supporter? Without hesitation, Caleb responds:
Nick Jonas.

Why?
I like him because he likes music and I like music.  He has diabetes so I feel like I can perform like him when I grow up because I think I want to be a musician.

Caleb’s brother, Colin, who is wise beyond his ten years, asks:
What about Mom?

Caleb responds:
Oh yeah because she will always drive her car into school and save me when I need it like she’s Super Pod Woman.

I love you mom.

Caleb imitating Mom as "Super Pod Woman" driving to school to "save" him.

Day 1 – A day in the life of…diabetes.

Day 2 – Making the low go.

Tomorrow’s topic – To carb or not to carb.

Making the low go.

Just part of the stash.

Thanks to everyone who checked in yesterday! Caleb really enjoyed reading all your comments. He sat and smiled and even chuckled out loud a couple of times. He has no idea what the food police are, but he found that reference downright hysterical.

It was great to read all your Day 1 posts and the different ways you all went about describing your day in the life of diabetes.

Caleb’s contribution today is most definitely short, and undeniably sweet!

Day 2 of Diabetes Blog Week.

Making the low go. Tell us your favorite way to treat a low.

Caleb’s top choices in his words:
Mom, it really doesn’t matter to me. I use lots of sugar tablets. My favorite is apple because they are sour. I use them especially at school because it’s easy, but I also like:

juice,

raisins,

yogurt covered raisins,

sour Skittles,

Starbursts,

Yogos,

sugar cubes,

sugar packets,

Swedish fish,

dried apricots

and pretzels.

That’s it – quick and to the point.

Unsealed and ready to go.
Unsealed and ready to go.

I try to unseal all the containers as soon as I get them so I don’t have to waste time with those nasty buggers when Caleb needs sugar FAST!

As a side note, Caleb says they are easy, but he’s told me before that he prefers glucose tabs at school because they appear more like medicine.  It makes him uncomfortable to eat a “treat” or drink juice around the other kids since they don’t also get to indulge (or perhaps its more like avoiding the envious eyes around the classroom).

If you missed it, Day 1 – A day in the life with…diabetes.

Tomorrow’s topic: Your Biggest Supporter.