Minimizing Caleb’s disruption at school is paramount. Prioritizing this is less about restricting his classroom instruction, although that is an important right of his, but more about preserving his emotional health.
Every time Caleb has to perform a diabetes care task, it’s a reminder that he is different and that he has a burden from which those around him are free. It divides his attention from whatever is happening in his day, that those around him can give full attention. My goal is to minimize those disruptions, aka: reminders at the hope of avoiding burnout.
- In first grade we minimized visits to the nurse’s office. He checked in class and the nurse came to him.
- In third grade we removed the need for nurse supervision – he used a classroom phone to contact me when a care decision needed to be made.
- In fourth grade we utilized the school wifi system to allow him to text with me for added discretion.
- In sixth grade we introduced CGM in the Cloud.
In general, Caleb is more independent in his care. Where we used to have defined times to check in, now he checks in at his discretion.
There are even days when I don’t hear from him at all and the only diabetes task he has done at school is to bolus for lunch, and at that time, give Dexcom a look. On those days he’s had exactly one interruption to his day because of diabetes. Just one. It’s a taste of normalcy that struck me the first time it happened. It felt luxurious – like being pampered by not having to give this beast attention whenever it demanded it, which is something we’ve grown used to.
Because there are still beastly days, and you never really know when when they will be, we’re always on guard for it. So when the luxury days occur, they are relishable.
We’ve been able to eliminate the schedule because of Dexcom and CGM in the Cloud. We trust Dexcom. Caleb’s been using it for six years and the G4 has fantastic accuracy. We allow it to watch his blood sugar and let Caleb know when it needs attention. The addition of CGM in the Cloud means I also get alerts when Caleb’s blood sugar needs attention, no matter where he is.
We therefore think less about it. Neither of us wonder what might be happening. I’m not worried that he might be distracted and forgetting to address his blood sugar, Dexcom and Share2 are keeping watch for us.
We are allowed to forget about diabetes, even if it’s just for a little while, and it’s fantastic.
Caleb has used both the Nightscout and Dexcom Share2 CGM in the Cloud systems.
I am neither a doctor nor certified medical practitioner. How Caleb and I choose to manage his diabetes should not be taken as medical advice. Please consult with your doctor any treatment decisions.
2 Replies to “Forgetting Diabetes | Impact of Dexcom G4 and CGM in the Cloud”
Congrats for Caleb as well as his Mom, and Dr!!! Have had T1D for over 40 yrs now. It is so encouraging to hear someone call the” off” days, the “beasty” days!!! Am on pump and Dexcom. Have been struggling with CDE, Endos, etc. for quite a while. So PROUD of you CALEB !! My son, Mike was diagnosed with type 1 when he was 14. Now he is 26, married with 3 beautiful little ones!!! He is very active when he gets home from work. Does Crossfit, played soccer most of his school days. Now plays soccer and football with friends, as well as being goofy and running around the house with Nathaniel and the other 2 girls he has.
Can’t tell you enough how much reading your story has encouraged me. Keep enjoying life, don’t let any medical condition stop you, from being who you are. You may have to adjust a few things, but go for the goal!! Try not to let those beasty days get you down. All people have good and some yuky days.
Hi, Barb. Thank you for sharing your and your son’s story with me! I appreciate you stopping by and taking the time to comment and read. One of the most encouraging things for me is to hear the stories of people who have grown up with diabetes and are living happy and rewarding lives. Now I have two more! – Lo
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