Talking with Tony

Tony Rose, of Blogging Diabetes

My good friend, Tony, of Blogging Diabetes, asked to chat with me for his Podcast today. I told him he was crazy, because I’m a babbler, but he still went through with it!

I was so excited to talk with Tony. I feel like he and I have been friends since the beginning. He’s one of the first people I connected with on twitter and we hit it off immediately. He’s smart, analytical and kind. He’s a caring dad and husband. But he’s a Red Sox fan. ;)

In the podcast we talk about:

- Caleb’s diagnosis and the impact on Colin and Lila

- Dealing with diabetes at school and advocating for your child

- Letting go and giving your child more responsibility

- my favorite: standard deviation

- the awesomeness of Team Type 1 and the tip I got from Tony’s podcast with Phil Southerland

- and so much more.

I only wish I didn’t babble so much and Tony spoke more.

I’m going to reveal the special surprise Tony had for me at the end – a short little interview with Caleb. I had no idea. It was so nice to hear the two of them chatting. Caleb, however, is nice and succinct, not like his mom.

So if you dare, I invite you over to Tony’s blog, if not to listen to me, to listen to any of his amazing podcasts, and if nothing else, check out his great video on standard deviation!

School Blue-nity – Plans for Year Three

On Monday, November 14th, we will be holding our third School Blue-nity event at Caleb’s school.

The first year we raised some dough for JDRF.

Last year we did some myth busting.

This year our focus will be Team Type 1′s mission to make lives better for diabetic children in Rwanda.

When Caleb and Phil crashed in Central Park and Phil’s very expensive bike was pronounced dead, I offered several times to compensate Phil in some way for his loss. He adamantly refused over and over again. As we were saying our good-byes, I gave it one final shot and he conceded to suggesting a donation to help buy children much needed test strips. Of course I jumped at the opportunity and was slightly embarrassed at not thinking of it myself.

To hear that children in Rwanda test their blood sugar once a week or more likely once a month is saddening.

To hear that a family is relieved at the death of their diabetic child because now they can use the little money they have to buy food instead of insulin is, at best, heart-breaking.

To hear that children are abandoned by their families upon being diagnosed with diabetes is unthinkable.

But these are real stories.

Living with type 1 diabetes under the best of circumstances is a challenge. Caleb has the most advanced tools available to him, yet we worry all the time, we miss the mark often resulting in out of range blood sugars that make him feel unwell or disrupt his day. I worry that despite our best efforts, he will grow up and develop complications as a result of living with this disease for the majority of his life.

But I do not have to worry that he will inevitably and quickly become blind, develop nerve damage or kidney failure and have a significantly shortened life expectancy.

From Team Type 1's website - click to link

This is the reality for diabetic children in places like Rwanda.

Part of Caleb’s thank you note to Phil was “How can I help the children of Rwanda?”

Our family has made a monetary donation to Team Type 1 to help buy life-saving medical supplies. Our School Blue-nity event will ask our community to support Phil’s efforts too. In addition to asking classmates and staff to wear blue on November 14th, the administration has agreed to make it a “dollar day”, asking anyone willing and able to bring in a dollar to support this worthy cause.

Thank you yet again, Phil, for all that you do. Caleb is so proud to be able to possibly influence some aide for these children to which he so greatly relates. Thank you for giving that to him.

“It felt like you were my brother”

Caleb and Phil; photo credit: John Martin of Team Type 1

An event in Central Park to raise awareness for diabetes? Sure, let me check my schedule. It includes a bike ride with Phil Southerland and Team Type 1?! Clear the calendar; we’re there!

That’s exactly how it went. I gave no thought to logistics nor did I consider what the ride would entail. I just knew I wanted my family to be there for this unique opportunity.

I have two sons: an eleven year old aspiring triathlete, and an eight year old who loves to ride his bike and is living with diabetes. I also have a six year old daughter, who is very supportive of her older brothers and their ambitions.

Had I given it any thought, I might have considered that Central Park is not exactly flat and although Caleb has ridden his bike in the road for hours at a time, he’s never done anything remotely close to a four-mile, non-stop trek.

But I didn’t give it any thought. At least nothing beyond that Caleb might get to meet Phil again and if any of us couldn’t cut it, then we would stop. No big deal.

That’s not at all how the ride went.

Colin and Caleb had personal Team Type 1 escorts around the entire course. Thankfully no one buddied up with me. I thought my years of biking in my younger life would mean I would be the front runner of my family. I was left in the dust. Way back in the dust. I was grateful that my kids had responsible adults with them since I was not. I was even more grateful that no one was matched up with me because that would have been embarrassing.

Colin; photo credit: John Martin of Team Type 1

John Martin was the gracious team member who took the initiative to stay with Colin. Caleb had the honor of taking the ride with none other than Phil himself.

It was a gorgeous day. Perfect for a bike ride. There were lots of riders and pedestrians in Central Park.

At every turn in the road, I looked for something recognizable to let me know we were back to where we started. Turn after turn and hill after hill, there was no end in sight. Then finally, I saw the blue balloon attached to Caleb’s bike. It was pulled over to the side. I saw Colin and John. I thought, “Yippee, we’re done!”

But then I realized something was wrong. Phil was huddled with his arm around Caleb. I realized Caleb was crying and his leg was bleeding. Then I saw his hands were bleeding. He was scratched up, but okay. Phil was with him.

The first thing I remember Caleb saying was to Phil, “I’m sorry I broke your bike.” I realized John was right next to me holding half of Phil’s bike up with a bit of a shrug.

I mentioned that Colin is an aspiring triathlete. He had the honor of partaking in a triathlete camp this summer with Ironman, Cliff Scherb. He has a dream of getting a bike like Cliff’s. Right now that’s all it is: a dream. Those things are expensive. I knew Phil’s bike was of that caliber.

Phil’s concerns, however, were only for Caleb. Apparently some pedestrians cut in front of them. They both swerved to avoid them, but there weren’t enough places to go. Caleb turned into Phil’s back wheel and they crashed.

We were almost at the end. Caleb and I walked the rest of the way. We had all taken a wrong turn, so it ended up being closer to six miles than the planned four.

Lila had a respectable showing even if she didn't finish.

Despite the crash, it was a great day. We thought we would take a ride with others in the spirit of awareness, but it ended up being so much more. It’s a day none of us will forget.

Phil, thank you for sharing yourself and your story with us.  Thank you for showing my children they can do anything they set their minds to. Thank you for being kind and gracious; for setting such a gentlemanly example for my boys to follow. Thank you, Phil, for staying with Caleb and for pushing him up those hills. There is no way he could have done it without you. He is so proud to have completed the ride and for having you at his side.

John, thank you as well for staying with Colin and encouraging him. It would have been a bit of a bummer if he had to stay back with me. I’m so grateful you were there to allow him to go at his own speedy pace. You too were so gracious and kind to all of us. I can never thank you enough for the pictures. They are priceless.

We have had the privilege of meeting several Team Type 1 team members. They are all, without exception, inspirational athletes.  But perhaps more impressive to me is the exceptional caliber of people they are. They are top-notch, genuinely sincere, kind people.

Caleb wrote a thank you note to Phil. In it he says, “When you were with me it felt like you were my brother.”

That just sums it all up.

If you haven’t already, I encourage you to read Phil’s book, Not Dead Yet. His perseverance, courage and positive attitude are infused into to as you read it.

I also encourage you to read this recent interview with him mom, Joanna. There’s no question her strength and never-give-up attitude were a great influence to Phil.

Credit: New York Daily News

Lastly, here’s an article in the New York Daily News which is primarily an interview with Phil about the bike ride in Central Park but also includes a few words from yours truly.

Keep riding, or walking or whatever you do.  As Phil says, we’re all busy and it’s hard to make time for it, but when you consider that excercise adds years to your life, we really have nothing but time for it.