Caleb is my second of three children. He was diagnosed with type 1 diabetes at the age of three in January 2007. He has used the OmniPod Insulin Management System since April 2007 and the DexCom Continuos Glucose Monitor since September 2009.
Eight years later, Caleb is a tween in middle school and is invited for the first time ever to a friend’s house for a birthday party sleepover.
As with other milestones in his diabetes care, I took the cue from Caleb. He wanted to go. He developed a close group of friends in his new school and was excited about the party. Most notably, he did not even mention diabetes.
It’s often the first thing he thinks of, and a factor in choosing whether or not to do something. I see it in his face as the questions form: “who will be there, what kind of food will there be, how will I know if it has peanuts, how will I count carbs, what if I’m high, what if I’m low, what is this event about anyway? oh, who cares, it’s too much trouble, no thank you.”
This time the only question he had was, “Can I go, PLEEEEEEEZE?!?!?!?”
So he went.
There were a mountain of variables complicating blood sugar management, and by “complicating” I mean “bringing hell to earth”. He went to the party straight from a baseball game. Games vary in intensity and there is often some kind of blood sugar clean up needed on the other side. He arrived to ginormo pieces of ice cream cake – he was a late arrival because of the game and they were kind enough to hold off so he could be included. I’m not kidding when I say these pieces of cake were huge. Caleb often sends pictures of food with his hand in it as a point of reference for carb counting. His hand was dwarfed by the size of the piece of cake. And did I mention it was ice cream? “Happy birthday to yous” transitioned to an intense and seemingly never-ending match of manhunt. Movies, snacks, chatting and at some point in the wee hours boys were starting to fall asleep.
Blood sugars were all over the map. Gus, juice boxes, sugar tabs, correction boluses, extended boluses – they were all in play. There was a period of about 45 minutes where Caleb and I were texting each other while everyone else was asleep because we needed to be sure he recovered from a low and was safe to sleep.
It was a nuisance and it was disruptive, but Caleb did not complain once. He rolled with it. He was responsible and attentive to his diabetes, but he did not worry about it. He was in communication with me, but also made decisions on his own. Not all of them worked out, but he took corrective action as he needed.
All I could think of the next morning was what a mess his bgs were and how tired he must be. When I picked him up, all he had to say was what a great time he had, and filled me in on a litany of details of tween-boy, fun activities.
Two months later, he’s invited to his cousin’s new home for a sleepover with his brother and sister. Variables are fewer and blood sugars are much more cooperative. Caleb, who never ever wakes up to Dexcom alerts, blood sugar checks, or screaming sirens in his ear, set an alarm on his phone to wake and check at 2am. And he did! Bg was a magical 150 and it’s right back to sleep for him, nothing else to talk about until morning.
Sleepovers with type 1 diabetes – it seemed like the one “thing” we hadn’t yet dealt with and it was a gloomy cloud hanging over me, pulling at me, giving me angst. Although I’m not worry-free about the prospect of future sleepovers, Caleb has shown me he can be responsible and do what is needed to fit diabetes, the thing he can’t leave behind, into the fun he doesn’t want to miss.
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